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My Myasthenia Gravis Battle Part I

July 30, 2022



In the later part of 2018 I had just gotten a new job as a Database Manager for another nonprofit. It was so up my alley as I had done that for many years prior. I loved managing databases, running reports, helping, and serving my team, and the constituents.

A couple of months into the job I started feeling like something was not quite right physically. There was a certain amount of stress as there is with any new job, but because it was something I had always loved doing I felt sure it would pass. It didn't. I began to think I may have been in over my head, so I decided to resign. In a staff meeting the week I planned to resign, the CDO announced she was leaving. What?? Change of plans, I felt like I couldn't  'do that' to the department so I decided to wait until the new CDO was brought in. Bad Bad decision on my part - my brain and my body were quickly letting me down. 

One day while talking to a coworker I noticed my speech was a little off, slurred actually. She pulled me aside and said that she had noticed it a couple of times. Huh?? What is all this Lord? Then I noticed I could not for the life me concentrate, the brain fog was horrible. I picked up my laptop one evening to go home and it felt like it weighed 50 pounds. Then I couldn't walk very well, my legs felt like they had no strength and were going to collapse beneath me. Then my eyesight started getting weird, blurry and hard to even keep my eyes open. 

After MRIs and blood test, finally a diagnosis. I remember the day the new doctor, a neurologist, told me I had a rare autoimmune disease called, wait for it.... Myasthenia Gravis. "No known cause, no known cure." That was the beginning. This new doctor, the neurologist, (I'd never even heard of a neurologist up to that point) explained it all to me, it was like everything he said put words to every single thing I was experiencing in my brain and in my body. It was such a relief, yet at the same time there was no way I could have immediately comprehended the magnitude of how devastating and life changing this disease is. In fact, I remember driving home in the car after that appointment laughing out loud, saying "Lord, are you kidding me? 'A RARE DISEASE? ME?' yeah right..." 

In that visit that day the neurologist patiently and methodically explained a treatment plan. First, I would take drugs, which if you know me, you know I absolutely hate drugs, but if I had to take them for now, I would. (Take note of that 'for now' mentality) He also told me that he felt like if I had what he called IVIG Infusions on a regular basis I would go into complete remission. 

Okay, I give... what the heck is IVIG infusions?

To be continued! 

Lord Bless,

Barbie

Jeremiah 33:3


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Barbie And Her Battles

March 26, 2022

I was born in 1956 in Dallas, Texas. Yep, that makes me a genuine Texan and a full fledged, bona fide member of the Baby Boomer generation.

When I was 2 my mom and dad bought us a brand spanking new house in the suburbs. Me and my only sibling; my bossy big sister (BBS) had just about everything. Fast forward several years and the American dream fell apart. Most likely due to one act of adultery after the other on my father's part. He left us when I was 7 and BBS was 9. I did not see him again until I was 44 and BBS never did see him again. But that's another blog post. A few years later my mom remarried. My new step dad was an alcoholic. In fact, we did not have a kitchen table in our house. We had a bar instead. I could not add or subtract but I could draw a beer with the perfect head. 

Looking back now I believe something happened inside that little 7 year old girl. 
Something that would several years later lead to drug and alcohol addictions and a life-long struggle with food. I have been overweight all of my life. It's a battle that perhaps started back at 7? I don't know for sure, but I do know this for sure. It is still a struggle. 

By 1986 I had moved to southern California. When I left Texas a friend told me I was just running from a bad relationship, "You'll be back," she said. The truth is I was running from God. I found out you can run from Dallas to LA, but you can never outrun God. At 30 years old, in my living room in Riverside California, while watching a Christian TV channel I said the "sinner's prayer" and surrendered my life to Jesus Christ. He instantly delivered me from 17 years of the drugs, alcohol and cigarettes and living the life of what the Bible calls a harlot. He set me free from the shame and guilt of having lived that life for so many years. There has never been a time that I thought of something in the past and said, 'oh Lord forgive me' that I didn't immediately hear Him say "I already have."


Mom & me on our wedding night

I got into a good Bible teaching church, began to pray, study His word, fellowship with other believers and share my faith with others, even BBS. Within a few years I felt the Lord calling me to serve Him in Asia, which I did for almost 3 years. During that time I could not get enough of His word and He showed me so many things. The most important was that He wanted my whole heart. 


Mom & Step Dad circa 1970ish

I returned home to Texas and I could share so many things that He did in me and through me. One was leading my mom to saving faith in Christ just two weeks before He took her home to be with Him. The other was reuniting me with the man in that "bad relationship." He had also come to know the Lord and December 25, 1999 we were married. He's the absolute love of my life and we serve the Lord together in our local church. 

Me circa 1969 or 70ish At the bar!

Willie Joe & I circa 2003ish

About a year ago the Lord started speaking to my heart about not believing the lies of the enemy. He began to show me verses and impress on my heart the importance of one, memorizing scripture again, but then two, how important it is to get His truths deep deep within my spirit and believe them. Believe in such a way that it produces in me a change in the way I daily live my life. 

Then, to my total surprise, He started breaking my heart every time I saw an overweight woman just like me. I cried because I wanted so deeply to help her in some way. More verses came, like 

2 Corinthian 10:3-6 

3For though we walk in the flesh, we do not war according to the flesh. 4For the weapons of our warfare are not carnal but mighty in God for pulling down strongholds, 5casting down arguments and every high thing that exalts itself against the knowledge of God, bringing every thought into captivity to the obedience of Christ, 6and being ready to punish all disobedience when your obedience is fulfilled.

I've often wondered and ask the Lord, why, since He totally delivered me from all the drugs and alcohol, why has He not delivered me from food. I think park of it is faith, Romans 4 and Hebrews 11. But I believe now He is showing me it may be more of a spiritual battle as well as a mind, will and emotion battle. 

I hope you will join me as I seek Him and ask Him to show me these deep rooted lies and strongholds that I believed far too long. As an older overweight Christian woman I know He will show us! 

Lord bless you all!

Barbie

Jeremiah 33:3  

 



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The Whole Armor of God

June 30, 2016


Ephesians 6:10-20

Finally, my brethren, be strong in the Lord and in the power of His might.
Put on the whole armor of God, that you many be able to stand against principalities, against powers, against the rulers of the darkness of this age, against spiritual host of wickedness in the heavenly places.
Therefore take up the whole armor of God, that you may be able to withstand in the evil day, and having done all, to stand.
Stand therefore, having girded your waist with truth, having put on the breastplate of righteousness, 
and having shod your feet with the preparation of the gospel of peace;
above all, taking the shield of faith with which you will be able to quench all the fiery darts of the wicked one.
And take the helmet of salvation, and the sword of the Spirit, which is the word of God;
praying always with all prayer and supplication in the Spirit, being watchful to this end with all perseverance and supplication for all the saints-
and for me, that utterance may be given to me, that I may open my mouth boldly to make known the mystery of the gospel,
for which I am an ambassador in chains; that in it I may speak boldly as I ought to speak.

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Seek Ye First The Kingdom of God

November 10, 2013

Seek first the kingdom of God and His righteousness and all these things will be added unto you. Pretty simple if you think about it.



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The Most Important Choice - God Leaves Up To Us

May 18, 2012



A long time ago I got a daily calendar "Timeless Truths For Daily Living" by Max Lucado.

May 18

We cannot choose the weather. We can't control the economy. We can't choose whether or not we are born with a big nose or blue eyes or a lot of hair. We can't even choose how people respond to us. But we can choose where we spend eternity. The big choice, God leaves to us.
                   From: The Angels Were Silent
Everyone who calls on the name of the Lord will be saved.
Acts 2:21

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Refiner's Fire

April 21, 2012

It is said that the silversmith will not pour the hot silver into his molds until all the impurities have been removed and he is able to see his own reflection in the silver. So it is with our Lord, how do I know this?



Malachi 3:3
He will sit as a refiner and a purifier of silver;
He will purify the sons of Levi,
And purge them as gold and silver,
That they may offer to the LORD an offering in righteousness.

Isaiah 1:25&26
I will turn My hand against you,
And thoroughly purge away your dross,
And take away all your alloy.
I will restore your judges as at the first,
And your counselors as at the beginning.
Afterward you shall be called the city of the righteousness, the faithful city.

Our LORD desires to see His reflection in us. So much so that He goes to great lengths to show His love for us.

Romans 5:8
While we were yet sinners, Christ died for us.

John 1:12
As many as received Him, to them He gave the power to be called the sons of God, to those who believe in His name.

If you have 'received' Jesus Christ you can trust that He is at work in you and through you. Purging and stripping away the 'dross' that keeps Him from seeing His reflection in you. Will it be easy? No, most of the time it won't be. In fact, because we want to hold on so tightly to some things, it will be very difficult at times. However, you can rest assured, He will gently and patiently do His work in you when you allow Him to. And, He will get you safely through the refining and the purging.

Joshua 1:9
Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”


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Being A Christian Women

February 28, 2012

Elisabeth Elliot...

"The fact that I am a woman does not make me a different kind of Christian,

But the fact that I am a Christian does make me a different kind of woman."



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Just Kinda Missin' An Old Friend Tonight

July 16, 2011



Just missing my old friend Sandy tonight so I thought I would share a couple of her songs. Oh how she loved horses, all animals really. Even turtles. One time we had to stop in the middle of traffic to get a turtle crossing the road and put it way away from the road.
She is in heaven now, not because she was a gifted musician, though she was, and not because she was such a wonderful soul, she is only there because one day she realized her need for Jesus Christ and she was born again and trusted Him to take away all of her sins and forgive her.
The Bible says that unless we are born again we will not see the Kingdom of heaven.
Here is the link, hope you enjoy.

http://www.sandroid.org/sandroid/wasftp.sandroid/mp3/Lately-064.mp3

http://www.sandroid.org/sandroid/wasftp.sandroid/mp3/TheLighthouse-064.mp3
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Waiting On God

November 17, 2010


The soul of my existence once I have been born of the Spirit is to wait continuously and expectantly on my LORD to lead me and guide me in to all Truth and His abiding will for my life.
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Trust and Obey - There's No Other Way

October 12, 2010


Many years ago on my first trip into China I found myself in the home church of Wang Ming Dao. The only words spoken in English that day came from the elderly Pastor at the end of his message; "Trust and Obey, for there is no other way!"

The hymn writer said in order to be happy in Jesus, we must trust and obey.

My thought today is that I will trust and obey my Lord. When I don't understand the whys or the hows or even the where on earth did that come froms...  I will trust and obey.
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Forgiveness

August 26, 2010





Forgiveness is the aroma of the orchid  
left upon the heel of the one who has crushed it.
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Jesus Loves Me This I Know

August 8, 2010

For the Bible tells me so,
Little ones to Him belong,
We are weak but He is strong.



A little known verse of this old hymn goes like this...

Jesus loves me loves me still,
Though I'm very weak and ill,
If I love Him when I die,
He will take me home on high.

Yes, Jesus loves me
Yes, Jesus loves me
Yes, Jesus loves me
The Bible tells me so

This morning my 98 year old Granny is laying in a hospital bed in Arlington Texas. She is so very weak and ill. She is in very good hands there because the nurses are wonderful. Granny particularly likes one.

When Rachel comes into the room and Granny hears hers voice, she opens her eyes and smiles so brightly at her. While Granny is in good hands here on earth, ultimately the same question remains true for all of us.
If I love Him when I die...


Do you love Him today? You never know when your last breath here on earth will be the one that takes you into eternity. Very young, very old, or somewhere in between, have you found that empty place in your heart that leads to your knees? If not, take a moment today to humble yourself in the sight of the Lord, confess you have missed the mark, ask Him to forgive you, and now live your life for Him.
Though my Granny is very weak and ill, because she found that place in her heart not too many years ago, she's ever in her Heavenly Father's loving Hands, safe and secure.
Now she loves Him, loves Him still,
Though she's very weak and ill,
Since she will love when she dies,
He is going to take her Home on high!
Romans 10:9-13
"...that if you confess with your mouth the Lord Jesus and believe in your heart God raised Him from the dead, you will be saved. For with the heart one believes to righteousness, and with the mouth confession is made to salvation. For the Scripture says, "Whosoever believes on Him will not be put to shame." For there is no distinction between Jew and Greek, for the same Lord over all is rich to all who call upon Him."
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GooD MorNing WorlD

August 5, 2010

This is the day the LORD has made,
I will rejoice and be glad in it.
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August 3, 1929

August 3, 2010

Today would have been my Mama's 81st birthday. I used to tease her and say, "Hey Mom, now remind me again, which one did you used babysit for, was it George Washington or Abraham Lincoln?"

Donna Belle Cochran Morgan Coley August 3, 1929 to August 13, 2000.
My Mama died of colon cancer.

Now to all of you nice stuborn people I say this.
If you have even one person on this earth who loves you get your colonoscopy!!!

I love you Mama Doodle!

Me and Mama and the dog Chi Chi in 1961



Donna Belle in about 1999

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Last Days?

July 28, 2010


But know this, that in the last days perilous times will come:
For men will be lovers of themselves, lovers of money, boasters, proud, blasphemers, disobedient to parents, unthankful, unholy, unloving, unforgiving, slanderers, without self-control, brutal, despisers of good, traitors, headstrong, haughty, lovers pleasure rather than lovers of God, having an outward apperance of godliness but denying its power.




parentcide

ONE-WORLD RELIGION NOW OFFICIALLY BORN!! A SPIRITUAL EQUIVALENT TO THE UNITED NATIONS!



You decide...

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My God Is My Keeper

July 26, 2010

I will lift us my eyes to the hills
from whence comes my help?

My help comes from the LORD,
who made the heaven and earth.

HE will not allow my foot to be moved,
HE who keeps me will not slumber,

Behold, HE who keeps Barbie,
shall neither slumber nor sleep.

The LORD is my Keeper,
The LORD is my shade at my right hand.

The sun shall not strike me by day,
Nor the moon by night.

The LORD shall preserve me by from all evil,
HE shall preserve my soul.

The LORD shall preserve my going out and my coming in,
From this time forth, and even forevermore.

As the mountains surround Jerusalem,
So the LORD surrounds HIS daughter Barbie,
From this time forth and forevermore.

So be it.

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Cure For Feeling Old

February 16, 2010

If you are getting, shall we say, more mature age wise, and have maybe been contemplating the fact that perhaps you are not completely 100% on board with this whole growing older business then I have just discovered the cure for you! And me.


First, David said, "I will go to the God of my youth and find strength in my day of trouble."


Second, spend the day helping remodel the youth room with 5 kids and 5 adults who act like kids! Your youth will be renewed within minutes!
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God, my exceeding joy!

February 1, 2010


Psalm 43:4

Then I will go to the alter of God,
To God, my exceeding joy.
And on my harp I will praise You,
O God, my God

Can you just imagine? The God who created the universe and the heavens and knows each and every star and knows all their names and exact locations, wants to be my exceeding joy.
Wow, now that is something I really cannot wrap my mind around.
He created me, He knows me, and He knows every fault I have. If I were to be really honest, I would have to confess that I don't honor Him, obey Him, seek Him or follow Him the way I should, and yet He stills wants to be my exceeding joy.
Oh my...Oh God my God.
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God is Faithful! Period

January 9, 2010

How many times have you felt like you are all alone and in your own little world? Perhaps you have even questioned what you are here for and why you were even born. Maybe even some days you think there is just no way you can go on. You feel like this is just too hard, this up hill battle gets worse and worse, harder and harder and there is absolutely noone who knows, or even cares, and certainly no one earth who can help you out of this rut you are in.

Life is hard. Sometimes the waves keep crashing in on us and we see no other way of escape than to end it all. Please know that there is a Way out and there is an exit Door. He is Jesus Christ the Messiah. He came to set captives free. To give a future and a hope to all who call upon Him. All one need do is to call upon His Name. Just do it, call out, cry out, plead if need be, just do it.

Jesus is as close as a whispered prayer to Him. When you draw near to Him the Bible says He will draw near to.

Are you in your garden of Gathsimany alone and without hope? Are you so burning inside to have a friend who stickes closer to you than your family? If so, that friend is Jesus. Jesus Christ is not just some dead guy who died on a cross 2000 years ago. He is alive and wants to draw you to Himself. He is there for you. Always.

I challenge today to cry out to Him. You will never be alone again.

If you have a Bible, pick it up, go toward the back of it and find the book of Matthew and start to read. Be careful to read chapter 11. Then go back toward the front of it and find the book of Jeremiah. Go to the 29th chapter and read verses 11 threw 13 and move on to the 33rd chapter and read verse 3.

Let's talk.
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My old friend Bill

October 28, 2009

Cheryl D called today to tell me that Bill had passed away. He is with the Lord. I am sad. How many times have I thought about him and wondered where he was and what he was doing. Oh how I wish now I would have made the effort to get in touch with him.
Do you have someone like that in your life? If you do, would you please take a few minutes to contact them today? Tomorrow my be too late.

Selah
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Is Your Weight Your Struggle?

Is Your Weight Your Struggle?
If you are an over 50 Christian woman who, like me, has struggled with being overweight your whole life, then this community is for you. You are not alone my sister. We are going to tackle the lies we have been 'feeding' ourselves with the Word of God and by casting down strongholds through the power of the Holy Spirit. There are others who care and can encourage you through the hard times. But above all, God loves you and is there for you. Always!

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